Incorporated in 2019, the Founder & CEO, Joanne Paquette was diagnosed early 1965 with Multiple-Enchondromatosis, a form of Ollier’s disease. A blessing for her parents, a family member was an orthopedic specialist, and took on Joanne’s case, she became the guinea pig. The ratio for this ultra-rare disease was 1 in a million. At four and a half years of age, Joanne had her first surgery, one of several.

Joanne is very dedicated to helping others, it’s just in her. However, when it comes to children with Ollier or Maffucci she is focused and understanding. RAREsies Rule also offers stability, comfort and hope to families globally. Connecting you to others, consultation services, years of experience with Ollier disease, RAREsies Rule is here for you.

Looking for help with your rare disease? Search our Rare Organizations section, or reach out if you need assistance. RAREsies Rule is known globally, connected to a variety of resources, including gene therapy, support systems, and research on Ollier and Maffucci. We want to bring awareness for RAREsies everywhere!

Post-Secondary education is another key element to our organization. Joanne is determined to help Ollier & Maffucci Warriors attain their dreams and reach their goals. Due to the extreme amount of surgeries required, these Warriors are in and out of school regularly. From elementary to high school, they will not be recognized as much as other and we want to change that. The biggest next step out of high school is post-secondary education. Stability, your future, your life ahead, independent. A post-secondary educational scholarship offers a first step toward your goals, it will provide you confidence and appreciation.

Please help us support Ollier RAREsie Warriors, your donation with help dreams come true. Awareness, support, guidance, are all part of our organization. However, Ollier/Maffucci Warriors, are the heart of RAREsies Rule/Ollier’s Disease Canada.

Always walk with pride, have happiness & love in your heart, and know that your journey matters. Please share our hashtags within your social media platforms and help bring awareness for RAREsie Warriors globally, and don’t forget to include @raresiesrule!

#RAREsiesRule #OllierWarriors #MaffucciWarriors #NeverGiveUp #StayStrong #KeepSmiling